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https://swslhd.intersearch.com.au/swslhdjspui/handle/1/12642| Title: | Quality of Life in Hungarian Parents of Autistic Individuals |
| Authors: | Volgyesi-Molnar, M. Gyori, M. Eapen, V. Borsos, Z. Havasi, A. Jakab, Z. Janoch, L. Nemeth, V. Oszi, T. Szekeres, A. Stefanik, K. |
| Affiliates: | Hungarian Academy of Sciences - ELTE University ?Autism in Education? Research Group, Budapest, Hungary Faculty of Special Education, Institute of Special Needs Education for People with Atypical Behaviour and Cognition, ELTE University, Budapest, Hungary Discipline of Psychiatry and Mental Health, School of Clinical Medicine, Faculty of Medicine and Health, University of New South Wales, Sydney, NSW, Australia Academic Unit of Infant, Child and Adolescent Psychiatry Services (AUCS), South Western Sydney Local Health District & Ingham Institute, Liverpool, Australia Faculty of Special Education, Institute for the Psychology of Special Needs, ELTE University, Budapest, Hungary Faculty of Education and Psychology, Doctoral School of Education, ELTE University, Budapest, Hungary Hungarian University of Agriculture and Life Sciences, Institute of Education, Kaposvar, Hungary |
| Issue Date: | 2024 |
| Journal: | Journal of Autism and Developmental Disorders |
| Publisher: | Springer |
| Abstract: | Purpose: Parents of autistic individuals have been known to have a lower overall quality of life (QQL) than those of typically developing children. We present the first Hungarian large-sample study whose objective was to explore the differences in QOL between parents of autistic individuals (AS) and those of neurotypical (NT) persons. Methods: Based on the ABCX model we developed a questionnaire comprising standardized scales to characterize the life of parents involved. Our data came from parents of 842 individuals (ASD = 521, NT = 321) between 0 and 49 years. Battery deployed standardized instruments to examine quality of life (WHO-QQL BREF and Quality of Life in Autism questionnaire, QOLA). We assessed the families? socio-economic/demographic characteristics, parents? psychological well-being, the autistic/neurotypical individuals? characteristics, and the interventions. Results: Our data showed significantly lower QOL in parents of autistic individuals in all domains of questionnaires. We analyzed 20 relevant factors to uncover the predictors of parental QOL. We confirmed the existence of most but not all predictors present in earlier literature and identified intervention-related predictors. Conclusion: Our study confirms the importance of supporting parents in their role, and of providing health and social supports that focus on quality of life, in addition to child care. � 2024, The Author(s). |
| URI: | https://swslhd.intersearch.com.au/swslhdjspui/handle/1/12642 |
| ISSN: | 01623257 (ISSN) |
| Digital object identifier: | 10.1007/s10803-024-06243-3 |
| Appears in Collections: | South Western Sydney Local Health District |
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