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https://swslhd.intersearch.com.au/swslhdjspui/handle/1/12999| Title: | Sociodemographic and clinical indicators of children and young people with cerebral palsy and reported unmet social needs |
| Authors: | Yeoh, A. Ostojic, K. Berg, A. Garg, A. McIntyre, S. Scott, T. Eapen, V. Woolfenden, S. Paget, S. Azmatullah, S. Burnett, H. Cadiri, M. Calderan, J. Chambers, G. Dale, R. Dee-Price, B. J. Rojas, D. D. Henry, G. Karem, I. Lingam, R. Martin, T. Masi, A. Mimmo, L. Mohamed, M. Olaso, A. Scarcella, M. Scott, T. Shiva, S. Smithers-Sheedy, H. Stojanovic, V. Strnadov�, I. van Hoek, D. van Hoek, M. Vasquez, J. Wilkinson, A. Woodbury, M. Zacharko, J. Zwi, K. |
| Affiliates: | Kids Rehab, The Children's Hospital at Westmead, Westmead, NSW, Australia Community Paediatrics Research Group, Central Clinical School, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia Child Health Equity Center, Department of Pediatrics, UMass Chan Medical School, UMass Memorial Children's Medical Center, Worcester, MA, United States Cerebral Palsy Alliance Research Institute, Specialty of Child and Adolescent Health, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia Rehab2Kids, Sydney Children's Hospital, Randwick, NSW, Australia Faculty of Medicine and Graduate School of Biomedical Engineering, University of New South Wales, Sydney, NSW, Australia Discipline of Psychiatry and Mental Health, School of Clinical Medicine, University of New South Wales Sydney, Sydney, NSW, Australia Academic Unit of Child Psychiatry, South West Sydney Local Health District and Ingham Institute, Sydney, NSW, Australia Sydney Institute for Women, Children and their Families, Sydney Local Health District, Sydney, NSW, Australia Faculty of Medicine and Health, The Children's Hospital at Westmead Clinical School, The University of Sydney, Sydney, NSW, Australia EPIC-CP Group, University of New South Wales/University of Sydney, Sydney, NSW, Australia |
| Issue Date: | 2024 |
| Journal: | Developmental Medicine and Child Neurology |
| Publisher: | John Wiley and Sons Inc |
| Abstract: | Aim: To determine the frequency, type, clinical, and sociodemographic associations of unmet social needs in children with cerebral palsy (CP). Method: We conducted a cross-sectional study of parents and carers of children with CP attending a specialist hospital clinic between July and September 2022. Unmet social needs were self-identified using a survey, guided by the WE CARE survey instrument and adapted to the local context. Sociodemographic and clinical data were obtained from medical records. We performed descriptive analysis of participants' unmet social needs, sociodemographic factors, and clinical factors, and examined for associations using a ?2 test and logistic regression. Results: A total of 105 parents and carers completed the survey. Of these, 68 (64.8%) reported one or more unmet social need, with 24 (22.9%) reporting three or more unmet needs. A higher number (three or more) of unmet needs was associated with Gross Motor Function Classification System levels IV and V (odds ratio [OR] = 3.77, 95% confidence interval [CI] = 1.44?9.86) and intellectual disability (OR = 4.63, 95% CI = 1.61?13.31), but were not significant when corrected for neighbourhood socioeconomic disadvantage. The greatest socioeconomic disadvantage was associated with housing concerns (p = 0.002), food (p = 0.026), and financial insecurity (p = 0.02). Interpretation: Unmet social needs are experienced by most families of children with CP. This study highlights the importance of systematic pathways to identify and address unmet social needs. � 2024 Mac Keith Press. |
| URI: | https://swslhd.intersearch.com.au/swslhdjspui/handle/1/12999 |
| ISSN: | 00121622 (ISSN) |
| Digital object identifier: | 10.1111/dmcn.16041 |
| Appears in Collections: | South Western Sydney Local Health District |
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